Some links that seem to be worth checking out for fellow gardeners…
- DYSmd: a PHR ($50/yr) with an interesting privacy feature; uses only a username and password, no name or other identifying info. I think you have enter your data. It does accept scanned PDFs.
- Steve Holcombe’s 2008 post on Scoble & Data Ownership vs Control: Steve tweeted me today with this link in response to my comment on control vs ownership.
- DataPortability Project: “Data portability is the ability for people to reuse their data across interoperable applications. The DataPortability Project works to advance this vision by identifying, contextualizing and promoting efforts in the space.” They seem to be struggling with some of the same organizational issues as Flower is, though they are much further along than we are.
- Privacy By Design: expanding on Ontario’s Ann Cavoukian’s ideas on building in privacy at all levels, “ensuring privacy and personal control over one’s information.”
- UHR (Universal Health Record): this speaks to something I’ve been thinking about lately, the UHR (rather than EHR or PHR). We need to be thinking about UHRs, where one’s health data is aggregated from multiple sources, not siloed in an insurance company’s tethered PHR or in a hospital’s EHR or a doctor’s EMR. Ideally, this would also be used by health care providers to maximize their ability to provide the sort of care that comes from a 360-view of a patient’s health data.
- Personal Medicine International’s FAQ page: I like their use of a combined EHR/PHR for patient and provider access. Very forward-thinking.
- Roadmaps: the Flower team has been thinking about where we are now and where we want to be. Specifying a roadmap makes sense.